🏥 Médical & Santé
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Gillian medical appeal
0€
arrecadados
0
doadores
29
dias restantes
📋 Sobre este projeto
When my younger brother was diagnosed with a rare neurological condition, our family felt lost—specialists were hours away, and treatments cost more than we could afford. Every day, I watched him struggle to do simple things like holding a spoon or saying my name. But I also saw his incredible strength and smile. That’s when I knew I had to act. This cause matters because no family should face thi
📖 A história completa
My brother is fighting a rare neurological condition. You can help him — and other children like him — get the care and therapy they deserve.
Our story
My name is Mutai Amosand I live in Kenya. My younger brother, Gilian kiptoo, was diagnosed with a rare neurological disorder when he was only 1 year. The doctors told us it affects his muscle control, speech, and ability to perform even the simplest daily tasks — like holding a spoon, sitting up unaided, or saying my name.
But here’s what the medical papers don’t show: his courage. Every morning, he tries again. And somehow, through the pain and frustration, he still smiles.
Our family has spent the last 1 year traveling from our rural home to specialist centres in Nairobi . Each trip costs money we don’t have — for transport, accommodation, consultations, and medicines. And the waiting lists are long.
The problem we face
· No local therapy services – The nearest physiotherapist and speech therapist are over 100 kilometres away. We can’t afford weekly travel.
· Expensive equipment – Basic items like a standing frame, communication board, or therapy ball cost more than our monthly household income.
· Isolation – Many families in our village face the same struggle. But nobody talks about rare diseases, so children like my brother suffer silently.
How your donation will help
I’m not asking for money to “save my brother” with a single miracle cure — because that doesn’t exist for his condition. Instead, I’m raising funds to build sustainable, local support so that he and other children can receive therapy every week, not once a month.
With 500,000 KES /4,000 USD, we will:
1. Buy essential therapy equipment (standing frames, sensory toys, grip aids, a portable speech tablet) – 150,000 KES
2. Train two community health workers in basic neurological physiotherapy – 80,000 KES
3. Rent a small therapy space in our town for 12 months – 180,000 KES
4. Cover transport and supervision for my brother’s monthly specialist reviews – 90,000 KES
Every single item and service is real, local, and costed. I can share hospital letters and quotes from suppliers on request.
Why this matters beyond my family
Your support won’t only change my brother’s life. It will create a small therapy hub where 10–15 children from nearby villages can also get help. That means:
· Less time lost travelling to distant cities
· More consistent therapy = better long‑term results
· A community that stops hiding rare diseases and starts fighting them together
My brother may never be “cured.” But with daily therapy, he can learn to feed himself, say more words, and maybe even go to school. That is not small. That is everything.
Our story
My name is Mutai Amosand I live in Kenya. My younger brother, Gilian kiptoo, was diagnosed with a rare neurological disorder when he was only 1 year. The doctors told us it affects his muscle control, speech, and ability to perform even the simplest daily tasks — like holding a spoon, sitting up unaided, or saying my name.
But here’s what the medical papers don’t show: his courage. Every morning, he tries again. And somehow, through the pain and frustration, he still smiles.
Our family has spent the last 1 year traveling from our rural home to specialist centres in Nairobi . Each trip costs money we don’t have — for transport, accommodation, consultations, and medicines. And the waiting lists are long.
The problem we face
· No local therapy services – The nearest physiotherapist and speech therapist are over 100 kilometres away. We can’t afford weekly travel.
· Expensive equipment – Basic items like a standing frame, communication board, or therapy ball cost more than our monthly household income.
· Isolation – Many families in our village face the same struggle. But nobody talks about rare diseases, so children like my brother suffer silently.
How your donation will help
I’m not asking for money to “save my brother” with a single miracle cure — because that doesn’t exist for his condition. Instead, I’m raising funds to build sustainable, local support so that he and other children can receive therapy every week, not once a month.
With 500,000 KES /4,000 USD, we will:
1. Buy essential therapy equipment (standing frames, sensory toys, grip aids, a portable speech tablet) – 150,000 KES
2. Train two community health workers in basic neurological physiotherapy – 80,000 KES
3. Rent a small therapy space in our town for 12 months – 180,000 KES
4. Cover transport and supervision for my brother’s monthly specialist reviews – 90,000 KES
Every single item and service is real, local, and costed. I can share hospital letters and quotes from suppliers on request.
Why this matters beyond my family
Your support won’t only change my brother’s life. It will create a small therapy hub where 10–15 children from nearby villages can also get help. That means:
· Less time lost travelling to distant cities
· More consistent therapy = better long‑term results
· A community that stops hiding rare diseases and starts fighting them together
My brother may never be “cured.” But with daily therapy, he can learn to feed himself, say more words, and maybe even go to school. That is not small. That is everything.
